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Polio Outreach of Spokane

inspiration, news and knowledge from Polio Experience Network

Our aim: to provide experience based advice and emotional support for polio survivors, families and friends.
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^Featuring:inspiration -- stories and perspectives written by our staffnews -- events, trends, laws, inventions, etc. impacting PPS and disabilityknowledge -- articles written by medical professionals

Please note: This newsletter is no longer being published; subscriptions cannot be received. What follows is an archive.

The following issues contain the "POS Library," "P.E.N. & ink Link" and "Web Finds" columns. They also include these articles:

#43 Winter 2002, 2003
“But They LOOK So Good," by Sherri L. Connell, BA

Update From Northwest Futures Unlimited
"Beatitudes For Friends of People With Disabilities," by Marjorie Chappell

"Who Is In Charge Here Anyway?" by Sharman Collins

#42 Autumn 2002
“Polio Above the Neck," With Susan Perlman, M.D., Reported by Mary Clarke Atwood

"Rotary International Spearheads Polio Eradication," by Dave Graham
"Goodbye Marian" by Elinor Young

"Tell Your Story!"

"Oral Vaccine Danger Warning"

#41 Summer 2002
“When Your Home is Not A Safe Haven," by Laura A. Ryan, OTR/L, Maria H. Cole, OTR/L,
Dorothy D. Aiello, PT, Julie K. Silver, MD

"Futures Unlimited Opens a Clinic in Spokane," by Alex Looms
"More Than a Piggy Bank" by Elinor Young

               "In Remembrance of Robert Rubesh"
#40 Spring 2002
               “Combining Common Meds May Cause Stroke," by Michael Smith, MD
               "Breath Savers: A Report on Two Articles about Breathing Problems of Some Polio Survivors"
               "Polio and Post-Polio Syndrome," by Sheila Tohn, RN
               Northwest Futures Unlimited
               "When the Pain is Invisible," by Lisa Copen
               "Living With Disability: Being Politically Correct," By Dave Graham

#39 Winter 2001-2002
“Footwear for People With Post-polio Syndrome,"by Dennis J. Janisse, C.Ped.
..............."The Role of Activity," by James C. Agre, MD, PhD
...............Our Friend Edie Bradley
..............."Caring For Mom," by Elinor Young
..............."Living With Disability: Self, Family and Friends," by Dave Graham

#38 Autumn 2001
“Assistive Devices: How One Occupational Therapist With PPS Compensates ,” by Sandy Matsuda
..............."Shine Up Your Wheelchair and Travel!," by Gail Genereau
...............Bits And Pieces: Invacare recall; Creed To Live By; Vaccine injury compensation; Tray for scooter
...............“I Thank God That I Got Pneumonia," by Marian Zoesch with Elinor Young

#37 Summer 2001
“Veterans With PPS Take Notice”
..............."How I Found Peace," by Sharman Collins
..............."A Harmony of Peoples," by Dave Graham
. #36 Spring 2001
“When Caregivers & Spouses Train Wreck," By Connie Kennemer
..............."Pool Exercising," by Peggy Bran
..............."I'm Drinking From My Saucer," poem by unknown author
...............“Another Bad Hair Day in Mississippi," by Sharman Collins
..............."The Scoop on Special Needs Trusts" by Lisa Copin
..............."My Neighborhood Pharmacist," by Dave Graham
...............Bits and Pieces (an occasional column)

#35 Winter 2000-2001
“The Way We Do It (Getting Custom Crutches),” by Elinor Young
..............."Cold Intolerance and 'Polio Feet' as Post-Polio Sequelae," by Dr. Richard L. Bruno
..............."Honest Reflections," poems on life with PPS by Marian Zoesch
...............“Aspects of Compensatory Muscle Processes and Physical Activity in the Survivors of Polio,"
by Gunnar Grimby, MD, PhD; #34 Autumn 2000
“We Are Lucky. We Know Why We Hurt” by Dave Graham
..............."Pressing On," by Sharman Collins
..............."About Massage Therapy," by Nancy Lee, LMP
...............“Beating the Tribal Drum," by Dr. Bruno
Sister Kenny Film Seeks Interviewees: #33 Summer 2000; ...............“Polio, the Scourge of the 20th Century” by Dave Graham
..............."Last Wishes," on the ethics of physician-assisted suicide, by Paul Chamberlain
..............."Climbing Kilimanjaro," a book review by Liz Behrendt
...............Eaves-droppings by Mouse In Corner (notes from Polio Outreach of Spokane meetings)
...............“Childhood Polio May Cause Chronic Fatigue Syndrome in Baby-Boomers," by Dr. Bruno; #32 Spring 2000; ..............."When Herbs, Drugs and Other Things Don’t Mix," by Elinor Young; Birthdays to Remember
"Life Is Different...But Life is Good," by Dave Graham: Eaves-droppings by Mouse In Corner (notes from Polio Outreach of Spokane meetings)
11 Reasons for Liking a Wheelchair: An Announcement To Our Friends; #31 Winter 1999-2000; ..............."Standing With Confidence," by Elinor Young
...............The Way We Do It
...............Eaves-droppings by Mouse In Corner (notes from Polio Outreach of Spokane meetings)
...............An interview with Helen Gress, by Sharman Collins
..............."Post-Polio Protein Power: Eat Well, Be Well," by Dr. Bruno; #30 Autumn 1999; ..............."Polio Biology 1 - An Introduction to the Virus," by Eddie Bollenbach
               "Independent Decisions," by Dave Graham
               The Way We Do It - guest column by Margaret In Canada
               Eaves-droppings from M.I.C., (alias Marion Zoesch) (notes from Polio Outreach of Spokane meetings)
               "A Boy and a Puppy"
#29 Summer 1999
..............."Hands", author unknown
                Important Report from the Editor
                Taking Personal Responsibility or "You Want Me to Do What?" By Darlene Hansen
                The Way We Do It - guest column by Sylvia Smith
                Eaves-droppings from M.I.C., (alias Marion Zoesch) (notes from Polio Outreach of Spokane meetings)
                “A Boost Up,” By Elinor Young
                SOME TIPS are more useful than others ....; #28 January/February 1999
...............Oxygen Supplementation and Polio - A CAUTION
                "Choosing the Right Specialist," by Darlene Hansen
                "When Friends Turn Away," by Pat McGillivray
                Keep It Coming! - Subscription/Donation information
                "What Works For Me," by Dave Graham

Besides the regular "Sharman's News," "POS Library," "P.E.N. & ink Link" and "Computer Connections" columns, these issues also contain:

#27 November/December 1998

..............."VIEW FROM THE TANK OR FUTURES UNLIMITED, INC., TAKE FOUR", by Sharman Collins
                "The Statistics of Being Human," by Dave Graham
                NEW TREATMENT AVAILABLE IN SPOKANE FOR POST POLIO SYNDROME
                Research the Medical Resources Available to You or "Eenie, Meenie, Minie, Mo..."

#26 September/October 1998

                 "..Life!" by Elinor Young
               Evaluate Your Health or "How Did I Get Here From There?" by Darlene Hansen
                Summer's the Time for Picnics by Alex Looms
                We're Doing It! (Donation/Subscription information)

#25 July/August 1998
.             "My Quality of Life," by Sharman Collins
                Post-Polio Research: The State of the Art - 1998. Dr. Richard Louis Bruno
                "My Best Advocate," by Dave Graham

#24 May/June 1998

            "Riding the Ups, Downs and Back Ups," by Elinor Young
                  ACCESS Spokane
                  About Those Magnets...
                  An Explanation to Our New Readers
                  "What is the Clinical Presentation of Post-polio Syndrome and How is Diagnosis
                                        Confirmed?" by Spector and Sivakumar
                   Some Interesting Stats

#23 March/April 1998

                "Do Other People Feel Like This?" (by Darlene Hansen)
                "Thank You," (a poem by Marian Zoesch)
                How Much Do You Know About the Fats in Your Diet?
                "Bits & Pieces: Medical Terms - Hand Controls for Rental Cars
                "A Tale of Two Vaccines," (guest column by Nancy Baldwin Carter)

#22 January/February 1998

..............."The Woods," by Dave Graham
..............."The Eye of the Beholder," by Elinor Young
..............."Magnet Therapy, A Report on Recent Findings," by P.E.N. staff writers
...............Bits & Pieces: Drug Alert for PPSers; About Those Ages; Humor
..............."Thank You" (subscription information)

Besides the regular "Sharman's News," "POS Library" and (usually) "P.E.N. & ink Link" columns, these issues also contain:

#21 November/December 1997

..............."The Taming of a Scooter (or two)," (Humor by Elinor Young)
...............An Appeal
..............."Important Birthdays"
..............."Sailor, Biker, Pilot, Believer," an interview with Sue Ross
..............."Practical Nutrition," by Craig T. Hunt, Registered Dietitian & Nutrition Coach
..............."Hydration for Optimal Health," by Craig T. Hunt, R.D.

#20 September/October 1997

..............."To Blame or Not to Blame," by Dave Graham
...............ACCESS Spokane
..............."Osteoporosis," by Daria A. Trojan, M.D.
..............."Positive Approach to Better Health," by Sharman Collins
..............."Up and Over the Little Hill," by Faye Van Patter
...............Meet a PPS Friend, Denise Rew

#19 July/August 1997

..............."On Not Eating Dust Too," by Elinor Young
...............ACCESS Spokane (Dave Graham)
...............Subscription & Donation information
..............."We Didn’t Talk About It," by Dave Graham
..............."End of an Era," by Sharman Collins
..............."Some Advise About Scooters," by Christine Woodell

#18 May/June 1997

..............."Grouse or Give - My Choice," by Elinor Young
...............ACCESS Spokane - A new feature from Dave Graham
..............."From the P.T.’s Mouth," by Ed Snapp, R.P.T.
..............."Making Changes," by Sharman Collins
..............."Thank You" & Subscription Information

Out-dated material has been removed from the following issues:

#17 March/April 1997

..............."Asabing’s Legacy," Elinor Young
..............."Identity and the Disabled Perspective," Dave Graham
..............."Preparation for Polio Survivors Undergoing Dental Procedures," Dr. Richard Bruno
..............."Sound Bytes from a Pharmacologist," by Linda Scott

#16 January/February 1997

..............."Taking a Beating," Dave Graham
..............."Helpful Insurance Information," compiled by Linda Scott
..............."What Polio Survivors & Their Families Want Each Other to Know"
..............."Not Short of Amazing," Elinor Young

#15 November/December 1996

..............."To Japan in an Innertube," by Elinor Young
..............."The Knife is Not So Rough if...," by Richard L. Bruno
..............."A Butterfly on My Nose," by Elinor Young
..............."Washington State Fish & Game on Disability Issues," by Dave Graham
..............""Futures Unlimited, Part 2," by Sharman Collins

#14 September/October 1996

..........."...And the Bauzis Laughed," by Elinor Young
.............. "Futures Unlimited...," by Sharman Collins
..............."The Handicapped Parking Syndrome," by Dave Graham
..............."Ultimate Burnout," by Dr. Richard Bruno

#13 July/August 1996
.........."Exercise, What's Right For You," Mavis J. Matheson MD
.............. "Where Do I Find Peace and Comfort," Sharman Collins
.............. "History Revealed," Dave Graham
.............. "How Many Had Polio?" Dr. Richard Bruno
.............. "The Life You Have Been Living is Over," Alex Looms
#12 May/June 1996
#11 March/April 1996
#10 January/February 1996
#9 November/December 1995

#8 September/October 1995

#7 July/August 1995

..........."You Don't Look Sick" (by Elinor Young and Alex Looms)
.............. Just the FAQs (by Dave Graham)
.............. "Will the Real Sharman Collins Please Stand Up?"
#6 May/June 1995

.............. Spokane Polio Outreach Meeting Notes
.............. "Go-Karts and Such," by Elinor Young
.............. President Franklin Delano Roosevelt: A Disability Hero
.............. Copyright Information

#5 March/April 1995

..........."The Cause and Treatment of Post-Polio Fatigue," by Richard L. Bruno, Ph.D.,
.................................... .Nancy M. Frick, Lh.D., et. all
.............. "Super-Natural Strength" by Dave Graham
.............. "Making Changes," by Sharman Collins
.............. Boosting the Immune System
.............. True anecdote

#4 January/February 1995

..........."The Four A.M. Fears" by Sharman Collins
.............. "Birds of a Feather" by Dave Graham
.............. "Good Medicine" by Elinor Young
#3 November/December 1994

..........."Heroes" by Elinor Young
.............. "About Polio: A Specialist's Note" by Jacqueline Perry, MD
.............. "My Best Advocate" by Dave Graham
.............. "I Searched and Found" by Sharman Collins
.............. A book review by Sylvia Smith. -- Of Myths and Chicken Feet, A Polio Survivor Looks
............................ .....at Survival. By Nancy Baldwin Carter

#2 September/October 1994

.............. "Man's Self-Worth Misconstrued," by Dave Graham
.............. "God's Secret Weapon," by Elinor Young
.............. "Emotional Issues Brought On By Post-Polio Syndrome," by Brenna E. Beedle, Ph.D.
#1 July/August 1994

..........."P.P.S. In Under Two Minutes," by Dave Graham
.............. "God, Why Do I Hurt?" by Dave Graham
.............. Inspiration (by Elinor Young)

Many thanks to Tom Dempsey and David Brock for doing the initial HTML mark-up of newsletters #1 - 12.

inspiration, news and knowledge from Polio Experience Network

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