Included are a variety of sites from local support groups around the world, to national and international organizations and a few private sites that are not so much personal as they are a wealth of general PPS information.

Polio Experience Network home page

 
"P.E.N. & ink" newsletter

? What is post-polio syndrome?

Our Own Stories 

Students - For your research paper

Futures Unlimited, Inc. "Hope for the future."

Meeting s for your support group

Where Can I Find a Support Group?  

Links: Polio People and Places on the Internet

Mail-out library  

  PolioVaccine

Polio Outreach of Spokane

Alan Dove has set up PICO, the Polio Information Center Online "to provide information about poliovirus, the causative agent of paralytic poliomyelitis and also an important model system for studying viruses in the family Picornaviridae." It isn't all technical, though. There is also: "News | History | Pathogenesis | Epidemiology | Cellular Life Cycle." Recommended.

Futures Unlimited, Inc. offers "Hope for Improvement." Check out their .theory, methods of treatment and the testimonials of PPSers who have .regained function that had been lost. Recommended.

There is a list of recent medical articles on post-polio syndrome at Ernie Wollering's Medical Articles site. Just titles are listed, but he tells you how to obtain whole articles. Ernie also offers Ernie Wollering's Internet PPS Resources. You can find most anything there, if you look for it.

IPPSO, the International Post Polio Support Organization was "established to assist persons experiencing PPS, their families and friends. IPPSO is also a site maintained for the purposes of support, education, communication, and as a forum to meet other people with PPS around the world." One strong feature is its list of post-polio articles available online. Good site.

The Polio Connection of America Website is available at .

Chris Salter and the folks at Lincolnshire Post-Polio Network (England, U.K.) have built a very helpful Web Site. They state, "Our rapidly expanding online library offers full text versions of articles and research papers."

Drs. Bruno and Frick have put on the Web.
Visit Harvest Center's "The PPS AUDIO SYMPOSIUM," the "COMPUTERIZED ASSESSMENT PROGRAM (CAP) for PPS," "VAMPIRE BAIT: The Stress Annihilation AUDIO Workbook," the downloadable POST-POLIO LIBRARY and other goodies.

The Polio Epic Support Group's Website includes articles, links to other resources, an interesting photo gallery and more.

The Leicestershire Post Polio Network (UK) has a web page featuring their newsletter.

PPSers & Jesus say, "Several of us Christian PPSer's have come together and created a safe haven where we can talk about our common problems and hopefully, another will have an answer or solution." Well done page.

The Post Polio Resource Group of S.E. Wisconsin has gone online, and have done an excellent job. One of their unique offerings: "Some of our members are writing articles in the hope that their experiences and learnings will be of help to others." Check them out. (Also love their graphic of an animated wheelchair.) Recommended.

The  Sunshine  Special Post Polio Support Group of Palm Beach County, Florida has a website which offers general articles as well as information specific to the support group. They offer a newsletter whose purpose "is to provide the latest information and going-on's about Post Polio Syndrome." 

There is a distribution site for the Post Polio Network of NSW Australia`s
Newsletter.
Sally Aitken and have put up Welcome to / Bienvenue a Polio Quebec in French as well as English.

The Post Polio Syndrome Resources of Louisiana has a site with local information, general information and links to other sites.

The West Virginia Chapter of Polio Survivors says they exist "to provide support and current information to polio survivors who are experiencing (PPS) while promoting awareness of this disease."

The Polio Salon Japan says they have "A Total Information Resource for "POLIO" and "POST POLIO" in Japan by Mr. Nakagane, a polio survivor."

Post Polio Central is a very comprehensive list (without description or comment) of PPS and related WWW links, both articles and sites. Of particular help are the links to articles: "The links on this page will take you to general information, such as "what is PPS" to more advanced PPS information." Recommended.

The name Saskatchewan Awareness of Post Polio says it all. The aim of the association is to heighten awareness and share information throughout the province, with 1) polio survivors, and 2) medical professionals.

The of New South Wales, Australia, includes a listing of Australian support groups and online editions of their newsletter as well as other information. Well done site.

The Polio Pals Place is a group of PPS individuals, looking to help and direct new people. Polio Survivors Resource Center sponsors it. P.S.R.C. has a main function of finding why the resources from non profit organizations don't get to those in need.

The Post-Polio Awareness and Support Society of British Columbia lists about 50 area groups. It also has a literature list, links to online articles and other helpful information. 

A personal Website which is mainly a comprehensive list of links is Polio & Post Polio Links and Resources! by Linda Dempster. Good site.

The Vaccine Associated Polio Society is "dedicated to ensuring continued medical care and sound public policy for people living with Vaccine Associated Paralytic Polio (VAPP) through education, advocacy, and research." This site contains some interesting information.

Barbara Cello told us about these articles on PPS designed to educate the nursing community by Maureen Habel, MA, RN, of Long Beach CA and Patricia Strong, MA of Whittier CA -- In Texas --"Nursing and Allied Healthweek" OR "Healthweek" In California --"Nurse Week" The text of this two-part series is available on the continuing education pages of the Nurse Week Web site. -- Index Page ; Part 1 ; Part 2 .

This occupational therapist says, "Welcome to Grace Young's Energy Conservation Web Page." A polio survivor herself, Grace says that much of the material, including a monthly tip, "was gleaned from solutions I applied in my own life." Other tips came from the several hundred polio survivors she has taught over the years.

The NINDS has a Post-Polio Syndrome Fact-Sheet site containing a lot of basic PPS information. Polio Experience Network disagrees with some of their conclusions, including the statement that "PPS is caused by the death of individual nerve terminals in the motor units that remain after the initial attack of polio." (There is evidence that the nerves are, in fact, intact. See "Accute Anterior Poliomyelitis, Some Observations.") Though some of the "facts" presented on this page are old and therefore suspect, it can give you an over-view of the subject.

The Virtual Health Care Team is a project designed and sponsored by the School of Health Related Professions, University of Missouri-Columbia. This site has been set up for training medical professionals. Of particular interest is Case # 3, that of a PPS patient that is presented and reviewed and evaluated by various medical disciplines. And then Case # 4 is about the use of adaptive equipment in the treatment of PPS.

Personal Websites